Contact phone0808 8088 100 (free helpline)
AgeFrom 16 years old
Who is the service for?
Anyone caring for a person aged 16 or over who cannot make some decisions for themselves, and who needs support from health or social care.
Being unable to make a particular decision for yourself is known as ‘lack of mental capacity’.
This website has been developed following feedback from parents of young people who attended the Rainbows Hospice for Children and Young People, and faced real challenges around continued decision-making for their children once they reached adulthood.
As a result, monies from the NHS England Mental Capacity Act (MCA) Improvement Programme provided the funding to support a workshop for parents and carers of young people from across the East Midlands who had entered adulthood never having the capacity to make their own decisions.
The funding also helped to support the development of this website – a tool aimed to support parents so that they better understand their rights and options in decision-making as they continue to love and care for their adult child.
Parents and carers supporting this website wanted others to know that it is best not to wait until your child turns 16 before you begin to consider how the Mental Capacity Act 2005 affects you and your child when health and social care is required.